Wednesday, March 27, 2013

More of the same

Not a whole lot of new stuff going on with little man.  No new words, but he's 'talking' a lot.  Still not cruising but he's a professional puller-upper now :)  Crawling fast as lightning, and happy as ever.  Isaiah is now over 16 months!  Wow.  We did have a weight check earlier this month and he had gained really well.

Coming up...after a long break due to appointment conflicts and early access spring break Isaiah has his physical therapist and teacher coming tomorrow.  Next week he has physical therapy (not sure about his teacher coming as well or not) and another weight check.  Later in the month he has his second set of evaluations at the CDD.  Keep little man in your thoughts April 23rd.  This will be another LONG day for him (last time we were at the hospital 7 hours which was just too much for him! And me!), and we have a lot resting on this appointment.  His neuropsychology pediatrician will decide if she wants him to do the cystic fibrosis testing (personally I think he has about a 0% chance of having CF...but we will see what she says since I don't actually have a MD ;), and if he needs brain scans done.  Last time we were there he was 13.5 months with the head size of a 4-5 month old, so if we still haven't seen good growth he will be doing the scans, which will be hard on all of us.  Finally, this appointment will decide if he needs cognitive testing done.  Doing an IQ test on a baby just sounds horrible and long, so I just don't want him to have to go through more than absolutely necessary.  He will also meet with the CDD team for a review (OT, PT, speech, nutrition, dental, social services).  They tell me follow up evaluations are a bit quicker so hopefully it's just a few hours this time.  Honestly though, if I have to spend a day at the hospital the CDD is the place to be!  Free parking, all you can drink coffee and they even feed us :).  Plus there are plenty of things to keep Isaiah occupied.

Overall, I'm really optimistic about this next round of evals.  He's doing awesome!

1 comments:

AlandJo said...

Praying for yall! So excited to hear about all the gains your Isaiah is making!!